Soon your lawmakers will decide funding levels for the National Institutes of Health (NIH) and the Food and Drug Administration (FDA). Let your congressional representatives know, access to quality treatments for cystic fibrosis depends on adequate funding of these programs by sending a message today!
Right now your senators are considering legislation to reauthorize the Newborn Screening Saves Lives Act. This bill extends and expands existing legislation to assist states in implementing newborn screening programs, support parent and provider newborn screening education, and ensuring laboratory quality and surveillance. Early detection and treatment of cystic fibrosis is critical to a patient's quality of life. Let your senators know how important newborn screening is to you.
Your state lawmakers are considering how much to budget for programs that help many people with cystic fibrosis pay for their medications, visit care centers, afford hospital care and more. It is up to us to explain how essential these programs are for people with CF.